Autism spectrum condition: an update for dental practitioners – Part 1
NHS England. COVID-19 guide – Autism Spectrum Condition (ASC). 2020. Available at (accessed September 2024).
Betancur C. Etiological heterogeneity in autism spectrum disorders: more than 100 genetic and genomic disorders and still counting. Brain Res 2011; 1380: 42-77.
NHS England. Estimating the Prevalence of Autism Spectrum Conditions in Adults: Extending the 2007 Adult Psychiatric Morbidity Survey. 2012. Available at (accessed November 2024).
O’Nions E, Petersen I, Buckman J E J et al. Autism in England: assessing underdiagnosis in a population-based cohort study of prospectively collected primary care data. Lancet Reg Health Eur 2023; 29: 100626.
NHS Digital. Health and Care of People with Learning Disabilities Experimental Statistics 2019 to 2020. 2021. Available at (accessed September 2024).
World Health Organisation. Autism spectrum disorders and other developmental disorders: from raising awareness to building capacity. 2013. Available at (accessed September 2024).
Equality Human Rights Commission. The United Nations Convention on the Rights of People with Disabilities: A guide for disabled people and disabled people’s organisations. 2010. Available at (accessed September 2024).
World Health Organisation. International Classification of Disease 11th Revision. 2022. Available at (accessed September 2024).
American Psychiatric Association. Diagnostic and Statistical Manual of Mental Disorders. 5th ed. Washington: American Psychiatric Association Publishing, 2022.
NHS England. Guide to making information accessible for people with learning disability. 2018. Available at (accessed September 2024).
I-am-autism. What is Autism Spectrum Condition? 2024. Available at (accessed September 2024).
Mirkovic B, Gérardin P. Asperger’s syndrome: What to consider? Encephale 2019; 45: 169-174.
National Institute of Health and Care Excellence. Autism spectrum disorder in adults: diagnosis and management. 2021. Available at (accessed September 2024).
National Institute of Health and Care Excellence. Autism spectrum disorder in under 19s: recognition, referral and diagnosis. 2017. Available at (accessed September 2024).
Rogers S J, Vismara L A. Evidence-based comprehensive treatments for early autism. J Clin Child Adolesc Psychol 2008; 37: 8-38.
Criminal Justice Joint Inspection. Neurodiversity in the Criminal Justice System: a review of evidence. 2021. Available at (accessed September 2024).
Gurney J G, McPheeters M L, Davis M M et al. Parental report of health conditions and health care use among children with and without autism: National Survey of Children’s Health. Arch Pediatr Adolesc Med 2006; 160: 825-830.
Bishop-Fitzpatrick L, Rubenstein E. The physical and mental health of middle aged and older adults on the autism spectrum and the impact of intellectual disability. Res Autism Spectr Disord 2019; 63: 34-41.
Rong Y, Yang C-J, Jin Y, Wang Y. Prevalence of attention-deficit/hyperactivity disorder in individuals with autism spectrum disorder: a meta-analysis. Res Autism Spectr Disord 2021; 83: 101759.
Hollocks M J, Lerh J W, Magiati I, Meiser-Stedman R, Brugha T S. Anxiety and depression in adults with autism spectrum disorder: a systematic review and meta-analysis. Psychol Med 2019; 49: 559-572.
Weir E, Alison C, Warrier V, Baron-Cohen S. Increased prevalence of non-communicable physical health conditions among autistic adults. Autism 2021; 25: 681-694.
Lukmanji S, Manji S A, Kadhim S et al. The co-occurrence of epilepsy and autism: a systematic review. Epilepsy Behav 2019; 98: 238-248.
NHS. Other conditions that affect autistic people. 2022. Available at (accessed September 2024).
White A, Sheehan R, Ding J et al. LeDeR Annual Report: Learning From Lives and Deaths – people with a learning disability and autistic people. 2023. Available at (accessed September 2024).
Office of National Statistics. Outcomes for disabled people in the UK: 2021. 2022. Available at (accessed September 2024).
Da Silva S N, Gimenez T, Souza R C et al. Oral health status of children and young adults with autism spectrum disorders: Systematic review and meta-analysis. Int J Paediatr Dent 2017; 27: 388-398.
Watt R G, Venturelli R, Daly B. Understanding and tackling oral health inequalities in vulnerable adult populations: From the margins to the mainstream. Br Dent J 2019; 227: 49-54.
UK Government. Equality Act 2010. 2010. Available at (accessed September 2024).
UK Government. Disability Discrimination Act 1995. 1995. Available at (accessed September 2024).
National Association of Colleges and Employers. What is Equity? 2024. Available at (accessed September 2024).
UK Government. Autism Act 2009. 2009. Available at (accessed September 2024).
HM Government. Think Autism – Fulfilling and Rewarding Lives, the strategy for adults with autism in England: an update. 2014. Available at (accessed September 2024).
Scottish Government. Scottish Strategy for Autism: evaluation. 2021. Available at (accessed September 2024).
Welsh Government. Refreshed Autistic Spectrum Disorder Strategic Action Plan. 2019. Available at (accessed September 2024).
NHS England. South East all-age autism strategy 2021-2026. 2019. Available at (accessed September 2024).
NHS England. NHS Long Term Plan. 2019. Available at (accessed September 2024).
NHS England. Five-year NHS autism research strategy for England. 2022. Available at (accessed September 2024).
NHS England. Clinical standard – oral healthcare for autistic children and young people and/or those with a learning disability in special educational settings. 2023. Available at (accessed September 2024).
NHS England. Autism Health Passport. 2023. Available at (accessed September 2024).
Branford D, Gerrard D, Saleem N, Shaw C, Webster A. Stopping over-medication of people with an intellection disability, Autism or both (STOMP) in England Part 1 – history and background of STOMP. 2018. Available at (accessed September 2024).
Welsh Government. Reducing restrictive practices framework: guidance on reducing restrictive practices in childcare, education, health and social care settings. 2022. Available at (accessed September 2024).
Royal College of Psychiatrists. PS05/21 -Stopping the over medication of people with intellectual disability, autism or both (STOMP) and supporting treatment and appropriate medication in paediatrics (STAMP). 2021. Available at (accessed September 2024).
NHS England. Making Every Contact Count (MECC): Consensus statement. 2016. Available at (accessed September 2024).
American Society of Anaesthesiologists. Statement on ASA Physical Status Classification System. 2020. Available at (accessed September 2024).
Mannion A, Leader G. Sleep problems in autism spectrum disorder: a literature review. Rev J Autism Dev Disord 2013; 1: 101-109.
Madra M, Ringel R, Margolis K G. Gastrointestinal Issues and Autism Spectrum Disorder. Child Adolesc Psychiatr Clin N Am 2020; 29: 501-513.
Halmos E P, Gibson P R. Controversies and reality of the FODMAP diet for patients with irritable bowel syndrome. J Gastroenterol Hepatol 2019; 34: 1134-1142.
Gastroenterology Consultants of San Antonio. Low FODMAP Diet – FODMAP Foods. 2019. Available at (accessed September 2024).
Hirvikoski T, Mittendorfer-Rutz E, Boman M, Larsson H, Lichtenstein P, Bölte S. Premature mortality in autism spectrum disorder. Br J Psychiatry 2016; 208: 232-238.
Liu X, Sun X, Sun C et al. Prevalence of epilepsy in autism spectrum disorders: a systematic review and meta-analysis. Autism 2022; 26: 33-50.
Van Steensel F J, Bögels S M, Perrin S. Anxiety disorders in children and adolescents with autistic spectrum disorders: a meta-analysis. Clin Child Fam Psychol Rev 2011; 14: 302-317.
Humphris G, King K. The prevalence of dental anxiety across previous distressing experiences. J Anxiety Disord 2011; 25: 232-236.
Milgrom P, Newton J T, Boyle C, Heaton L J, Donaldson N. The effects of dental anxiety and irregular attendance on referral for dental treatment under sedation within the National Health Service in London. Community Dent Oral Epidemiol 2010; 38: 453-459.
Baron-Cohen S. The cognitive neuroscience of autism. J Neurol Neurosurg Psychiatry 2004; 75: 945-948.
Parr J, Woodbury-Smith M. Autism spectrum disorder. 2023. Available at (accessed September 2024).
MENCAP. Learning disability explained. 2024. Available at (accessed September 2024).
National Autistic Society. Meltdowns – a guide for all audiences. 2020. Available at (accessed September 2024).
NHS England. Meeting needs and reducing distress – guidance on the prevention and management of clinically related challenging behaviours in NHS setting. 2013. Available at (accessed September 2024).
Hatfield T R, Brown R F, Giummarra M J, Lenggenhager B. Autism spectrum disorder and interoception: abnormalities in global integration? Autism 2019; 23: 212-222.
National Autistic Society. Interoception and mental wellbeing in autistic people. 2022. Available at (accessed September 2024).
Kelly N, Kilgariff J. Should suicide risk assessment be embedded in undergraduate dental curricula? Br Dent J 2023; 234: 601-605.
Karpur A, Lello A, Frazier T, Dixon P J, Shih A J. Health Disparities among Children with Autism Spectrum Disorders: Analysis of the National Survey of Children’s Health 2016. J Autism Dev Disord 2019; 49: 1652-1664.
Powell P S, Pazol K, Wiggins L D et al. Health Status and Health Care Use Among Adolescents Identified with and Without Autism in Early Childhood – Four U.S. Sites, 2018-2020. MMWR Morb Mortal Wkly Rep 2021; 70: 605-611.
Eades D, Leung P, Cronin A, Monteiro J, Johnson A, Remington A. UK dental professionals’ knowledge, experience and confidence when treating patients on the autism spectrum. Br Dent J 2019; 227: 504-510.
Westminster Commission on Autism. A Spectrum of Obstacles: An Inquiry into Access to Health Care for Autistic People. 2016. Available at (accessed September 2024).
Brickhouse T H, Farrington F H, Best A M, Ellsworth C W. Barriers to dental care for children in Virginia with autism spectrum disorders. J Dent Child 2009; 76: 188-193.
NHS England. Guides for commissioning dental specialties – special care dentistry. 2015. Available at (accessed September 2024).
British Dental Association. Case-mix model training pack. 2007. Available at (accessed September 2024).
Bateman P, Arnold C, Brown R et al. BDA special care case mix model. Br Dent J 2010; 208: 291-296.
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